News/Events2022-06-18T01:36:57+00:00

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The FATIGUE-PRO: a new patient-reported outcome instrument to quantify fatigue in patients affected by systemic lupus erythematosus

By |August 9th, 2022|Categories: Publications|Tags: , , , |

The objective of this study was to develop a new PRO instrument to measure fatigue in SLE that addresses the conceptual [...]

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PROM feedback can lead to moderate improvements in communication between healthcare professionals and patients as well as in diagnosis, and quality of life.

By |October 12th, 2021|Categories: Publications|Tags: , , , |

The aim of this Cochrane Review was to find out whether healthcare workers who receive information from questionnaires [...]

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Integrating the Patient Voice: Patient-Reported Outcomes’ Future

By |August 9th, 2021|Categories: News, Resources, Videos|Tags: , , |

NEJM August 9, 2021 With Judith F. Baumhauer, MD, MPH & Jens Deerberg-Wittram, MD The past, present, and future pot [...]

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