About

About Us

The McGill Center for Health Measurement was created to promote the development and use of state-of-the-science health outcome measures and identify new opportunities to include patient-reported outcomes throughout health care services, the community, and research.

Why Measure?

Hear what matters most to patients and families in the healthcare system and how capturing the perspectives of people living with a chronic disease, clinicians, and other stakeholders offers new opportunities to improve the health of individuals, communities, and the population.

Our Vision

Our vision is to capture the perspectives, experiences, and preferences of patients to deliver value-based health care in an equitable manner and improve the health of the population.

We are partnering with key stakeholders to identify what matters most to people living with a chronic condition and improve the measurement of health outcomes.

We work with colleagues around the globe to help harmonize health measurements within and across countries and settings. Our work includes efforts are the development and use of core outcome sets, measures using a common metric, and the translation and cultural validation of measures into French.

To help ensure care is person-centred and to improve satisfaction, we are assessing the preferences, needs, and experiences of persons living with chronic conditions, their caregivers, the clinical team, and other key stakeholders.

Spotlight

Translating validated PROMs into other languages is a rigorous process that respects the standards of transcultural adaptation necessary to preserve the psychometric properties of the PROMs. Learn more here about consensus-based translation methods here for PROs and for observer, clinician, and performance outcomes

PRO Use in Canada: Highlights from the Montreal Canada-PRO 2-day workshop in November 2013.

Highlights and findings from this 2-day workshop in November 2013 – the first of its kind — are summarized in a special edition of the Journal of Clinical Epidemiology.

JCE Special Edition Articles

Bartlett SJ, Ahmed S. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 1: introduction. Journal of clinical epidemiology 2017;89:114-118. DOI: 10.1016/j.jclinepi.2017.04.012.
Mayo NE, Figueiredo S, Ahmed S, Bartlett SJ. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 2: terminology proposed to measure what matters in health. Journal of clinical epidemiology 2017;89:119-124. DOI: 10.1016/j.jclinepi.2017.04.013.
Noonan VK, Lyddiatt A, Ware P, et al. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management. Journal of clinical epidemiology 2017;89:125-135. DOI: 10.1016/j.jclinepi.2017.04.017.
Bingham CO, 3rd, Noonan VK, Auger C, Feldman DE, Ahmed S, Bartlett SJ. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 4: patient-reported outcomes can inform clinical decision making in chronic care. Journal of clinical epidemiology 2017;89:136-141. DOI: 10.1016/j.jclinepi.2017.04.014.
Mamiya H, Lix LM, Gardner W, Bartlett SJ, Ahmed S, Buckeridge DL. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 5: patient-reported outcomes can be linked to epidemiologic measures to monitor populations and inform public health decisions. Journal of clinical epidemiology 2017;89:142-147. DOI: 10.1016/j.jclinepi.2017.04.018.
Bartlett SJ, Witter J, Cella D, Ahmed S. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 6: creating national initiatives to support development and use-the PROMIS example. Journal of clinical epidemiology 2017;89:148-153. DOI: 10.1016/j.jclinepi.2017.04.015.
Sawatzky R, Chan EKH, Zumbo BD, et al. Montreal Accord on Patient-Reported Outcomes (PROs) use series-Paper 7: modern perspectives of measurement validation emphasize justification of inferences based on patient reported outcome scores. Journal of clinical epidemiology 2017;89:154-159. DOI: 10.1016/j.jclinepi.2016.12.002.
Ahmed S, Ware P, Gardner W, et al. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 8: patient-reported outcomes in electronic health records can inform clinical and policy decisions. Journal of clinical epidemiology 2017;89:160-167. DOI: 10.1016/j.jclinepi.2017.04.011.
Arbuckle L, Moher E, Bartlett SJ, Ahmed S, El Emam K. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 9: anonymization and ethics considerations for capturing and sharing patient reported outcomes. Journal of clinical epidemiology 2017;89:168-172. DOI: 10.1016/j.jclinepi.2017.04.016.

Selected Publications

2022

Morel, T., Cano, S., Bartlett, S. J., Gordon, C., Haier, B., Regnault, A., … & Cleanthous, S. (2022). The FATIGUE-PRO: a new patient-reported outcome instrument to quantify fatigue in patients affected by systemic lupus erythematosus. Rheumatology, 61(8), 3329-3340.
DOI: 10.1093/rheumatology/keab920

Hussain, J., Chawla, G., Rafiqzad, H., Huang, S., Bartlett, S. J., Li, M., … & Mucsi, I. (2022). Validation of the PROMIS sleep disturbance item bank computer adaptive test (CAT) in patients on renal replacement therapy. Sleep Medicine, 90, 36-43.
DOI: 10.1016/j.sleep.2022.01.001

Bartlett, S. J., Gutierrez, A. K., Andersen, K. M., Bykerk, V. P., Curtis, J. R., Haque, U. J., … & Bingham III, C. O. (2022). Identifying Minimal and Meaningful Change in a Patient‐Reported Outcomes Measurement Information System for Rheumatoid Arthritis: Use of Multiple Methods and Perspectives. Arthritis Care & Research, 74(4), 588-597.
DOI: 10.1002/acr.24501

Engler, K., Vicente, S., Mate, K. K., Lessard, D., Ahmed, S., & Lebouché, B. (2022). Content validation of a new measure of patient-reported barriers to antiretroviral therapy adherence, the I-Score: results from a Delphi study. Journal of patient-reported outcomes, 6(1), 1-12.
DOI: 10.1186/s41687-022-00435-0

Shahin, S., DiRezze, B., Ahmed, S., & Anaby, D. (2022). Development and content validity of the youth and young-adult participation and environment measure (Y-PEM). Disability and Rehabilitation, 1-13.
DOI: 10.1080/09638288.2022.2030809

2021

Engler, K., Vicente, S., Ma, Y., Hijal, T., Cox, J., Ahmed, S., … & Lebouché, B. (2021). Implementation of an electronic patient-reported measure of barriers to antiretroviral therapy adherence with the Opal patient portal: Protocol for a mixed method type 3 hybrid pilot study at a large Montreal HIV clinic. PloS one, 16(12), e0261006.
DOI: 10.1371/journal.pone.0261006

Ahmed, S., Zidarov, D., Eilayyan, O., & Visca, R. (2021). Prospective application of implementation science theories and frameworks to inform use of PROMs in routine clinical care within an integrated pain network. Quality of Life Research, 30(11), 3035-3047.
DOI: 10.1007/s11136-020-02600-8

Wojeck, R. K., Silva, S. G., Bailey Jr, D. E., Knisely, M. R., Kwakkenbos, L., Carrier, M. E., … & Thombs, B. D. (2021). Pain and Self-Efficacy Among Patients with Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort Study. Nursing research.
DOI: 10.1097/NNR.0000000000000528

Tang, E., Dano, S., Edwards, N., Macanovic, S., Ford, H., Bartlett, S., … & Mucsi, I. (2021). Screening for symptoms of anxiety and depression in patients treated with renal replacement therapy: utility of the Edmonton Symptom Assessment System-Revised. Quality of Life Research, 1-9.
DOI: 10.1007/s11136-021-02910-5

Bekker, C. L., Bossina, S., de Vera, M. A., Bartlett, S. J., de Wit, M., March, L., … & van den Bemt, B. J. (2021). Patient perspectives on outcome domains of medication adherence trials in inflammatory arthritis: an international OMERACT focus group study. The Journal of Rheumatology.
DOI: 10.3899/jrheum.201568

Hazlewood, G. S., Loyola-Sanchez, A., Bykerk, V., Hull, P. M., Marshall, D., Pham, T., … & Bartlett, S. J. (2021). Patient and rheumatologist perspectives on tapering DMARDs in rheumatoid arthritis: a qualitative study. Rheumatology.
DOI: 10.1093/rheumatology/keab330

Toupin-April, K., Décary, S., de Wit, M., Meara, A., Barton, J. L., Fraenkel, L., … & Tugwell, P. (2021, April). Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach. In Seminars in Arthritis and Rheumatism. WB Saunders.
DOI: 10.1016/j.semarthrit.2021.03.017

Bingham III, C. O., Bartlett, S. J., Kannowski, C., Sun, L., DeLozier, A. M., & Cella, D. (2021). Conversion of Functional Assessment of Chronic Illness Therapy–Fatigue to Patient‐Reported Outcomes Measurement Information System Fatigue Scores in Two Phase III Baricitinib Rheumatoid Arthritis Trials. Arthritis Care & Research, 73(4), 481-488.
DOI: 10.1002/acr.24144

Harb, S., Peláez, S., Carrier, M. E., Kwakkenbos, L., Bartlett, S. J., Hudson, M., … & Tao, L. (2021). Barriers and facilitators to physical activity for people with scleroderma: a Scleroderma Patient‐centered Intervention Network (SPIN) Cohort study. Arthritis Care & Research.
DOI: 10.1002/acr.24567

Lambert, S., McCusker, J., Belzile, E., Yaffe, M., Ihejirika, C., Richardson, J., & Bartlett, S. (2021). Using confirmatory factor analysis and Rasch analysis to examine the dimensionality of The Patient Assessment of Care for Chronic Illness Care (PACIC). Quality of Life Research, 30(5), 1503-1512.
DOI: 10.1007/s11136-020-02750-9

Bingham, C. O., Butanis, A. L., Orbai, A. M., Jones, M., Ruffing, V., Lyddiatt, A., … & Bartlett, S. J. (2021). Patients and clinicians define symptom levels and meaningful change for PROMIS pain interference and fatigue in RA using bookmarking. Rheumatology.
DOI: 10.1093/rheumatology/keab014

Fatima, S., Schieir, O., Valois, M. F., Bartlett, S. J., Bessette, L., Boire, G., … & Zummer, M. (2021). Health Assessment Questionnaire at One Year Predicts All‐Cause Mortality in Patients With Early Rheumatoid Arthritis. Arthritis & Rheumatology, 73(2), 197-202.
DOI: 10.1002/art.41513

Holdren, M., Schieir, O., Bartlett, S. J., Bessette, L., Boire, G., Hazlewood, G., … & Canadian Early Arthritis Cohort investigators. (2021). Improvements in fatigue lag behind disease remission in early rheumatoid arthritis: results from the Canadian early arthritis cohort. Arthritis & Rheumatology, 73(1), 53-60.
DOI: 10.1002/art.41499

Wu, Y., Kwakkenbos, L., Henry, R. S., Carrier, M. E., Gagarine, M., Harb, S., … & Ellis, K. (2021). Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study. Journal of psychosomatic research, 140, 110314.
DOI: 10.1016/j.jpsychores.2020.110314

2020

Montgomery, N., Howell, D., Ismail, Z., Bartlett, S. J., Brundage, M., Bryant-Lukosius, D., … & Barbera, L. (2020). Selecting, implementing and evaluating patient-reported outcome measures for routine clinical use in cancer: the Cancer Care Ontario approach. Journal of Patient-Reported Outcomes, 4(1), 1-9.
DOI: 10.1186/s41687-020-00270-1

Bartlett, S. J., Gutierrez, A. K., Andersen, K. M., Bykerk, V. P., Curtis, J. R., Haque, U. J., … & Bingham III, C. O. (2020). Identifying Minimal and Meaningful Change in PROMIS® for Rheumatoid Arthritis: Use of Multiple Methods and Perspectives. Arthritis Care & Research.
DOI: 10.1002/acr.24501

Craig, E. T., Perin, J., Zeger, S., Curtis, J. R., Bykerk, V. P., Bingham III, C. O., & Bartlett, S. J. (2020). What Does the Patient Global Health Assessment in Rheumatoid Arthritis Really Tell Us? Contribution of Specific Dimensions of Health‐Related Quality of Life. Arthritis Care & Research, 72(11), 1571-1578.
DOI: 10.1002/acr.24073

Wu, Y., Kwakkenbos, L., Henry, R. S., Tao, L., Harb, S., Bourgeault, A., … & Welling, J. (2020). Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: a scleroderma patient-centered intervention network covid-19 cohort study. Journal of psychosomatic research, 139, 110271.
DOI: 10.1016/j.jpsychores.2020.110271

Thombs, B. D., Kwakkenbos, L., Henry, R. S., Carrier, M. E., Patten, S., Harb, S., … & Ellis, K. (2020). Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study. Journal of psychosomatic research, 139, 110262.
DOI: 10.1016/j.jpsychores.2020.110262

Ahmed, S., Zidarov, D., Eilayyan, O., & Visca, R. (2020). Prospective application of implementation science theories and frameworks to inform use of PROMs in routine clinical care within an integrated pain network. Quality of Life Research, 1-13.
DOI: 10.1007/s11136-020-02600-8

Eilayyan, O., Visca, R., Zidarov, D., Ware, P., Bussières, A., & Ahmed, S. (2020). Developing theory-informed knowledge translation strategies to facilitate the use of patient-reported outcome measures in interdisciplinary low back pain clinical practices in Quebec: mixed methods study. BMC health services research, 20(1), 1-17.
DOI: 10.1186/s12913-020-05616-5

Dermer, E., Spahr, A., Tran, L. T., Mirchi, A., Pelletier, F., Guerrero, K., … & Bernard, G. (2020). Stress in parents of children with genetically determined leukoencephalopathies: a pilot study. Journal of child neurology, 35(13), 901-907.
DOI: 10.1177/0883073820938645

Santino, T. A., Monteiro, K. S., de Paiva Azevedo, M., Patino, C. M., Ahmed, S., & de Mendonça, K. M. (2020). Patient-and proxy-reported outcome measures instruments for the assessment of asthma control among adult and pediatric population: A protocol for systematic review. Medicine, 99(19).
DOI: 10.1097/MD.0000000000020078

2019

Engler, K., Ahmed, S., Lessard, D., Vicente, S., & Lebouché, B. (2019). Assessing the Content Validity of a New Patient-Reported Measure of Barriers to Antiretroviral Therapy Adherence for Electronic Administration in Routine HIV Care: Proposal for a Web-Based Delphi Study. JMIR Research Protocols, 8(8), e12836.
DOI: 10.2196/12836

Pancer, M., Manganaro, M., Pace, I., Marion, P., Gagnon, D. H., Laramée, M. T., … & Ahmed, S. (2019). A web-based physical activity portal for individuals living with a spinal cord injury: qualitative study. JMIR formative research, 3(3), e12507.
DOI: 10.2196/12507

Roberge-Dao, J., Yardley, B., Menon, A., Halle, M. C., Maman, J., Ahmed, S., & Thomas, A. (2019). A mixed-methods approach to understanding partnership experiences and outcomes of projects from an integrated knowledge translation funding model in rehabilitation. BMC health services research, 19(1), 1-16.
DOI: 10.1186/s12913-019-4061-x

Gogovor, A., Visca, R., Ware, M. A., Valois, M. F., Bartlett, G., Hunt, M., & Ahmed, S. (2019). Determinants of patient experience with low Back pain interdisciplinary care: a pre-post interventional study. Journal of pain research, 12, 3203.
DOI: 10.2147/JPR.S207989

Mate, K. K., Kuspinar, A., Ahmed, S., & Mayo, N. E. (2019). Comparison Between Common Performance-Based Tests and Self-Reports of Physical Function in People With Multiple Sclerosis: Does Sex or Gender Matter?. Archives of physical medicine and rehabilitation, 100(5), 865-873.
DOI: 10.1016/j.apmr.2018.10.009

Gagnon, D. H., Vermette, M., Duclos, C., Aubertin-Leheudre, M., Ahmed, S., & Kairy, D. (2019). Satisfaction and perceptions of long-term manual wheelchair users with a spinal cord injury upon completion of a locomotor training program with an overground robotic exoskeleton. Disability and Rehabilitation: Assistive Technology, 14(2), 138-145.
DOI: 10.1080/17483107.2017.1413145

2018

Auais, M., Morin, S. N., Finch, L., Ahmed, S., & Mayo, N. (2018). Toward a meaningful definition of recovery after hip fracture: comparing two definitions for community-dwelling older adults. Archives of physical medicine and rehabilitation, 99(6), 1108-1115.
DOI: 10.1016/j.apmr.2018.01.022

2017

Guay, C., Auger, C., Demers, L., Mortenson, W. B., Miller, W. C., Gélinas-Bronsard, D., & Ahmed, S. (2017). Components and outcomes of internet-based interventions for caregivers of older adults: systematic review. Journal of medical Internet research, 19(9), e313.
DOI: 10.2196/jmir.7896

Moreno, A., Zidarov, D., Raju, C., Boruff, J., & Ahmed, S. (2017). Integrating the perspectives of individuals with spinal cord injuries, their family caregivers and healthcare professionals from the time of rehabilitation admission to community reintegration: protocol for a scoping study on SCI needs. BMJ open, 7(8), e014331.
DOI: 10.1136/bmjopen-2016-014331

Collaborations

Collaborations with leading PROM experts around the world can lead to harmonized approaches, productive relationships, rich learning environments, and innovative approaches. Learn more about our local, national, and international partnerships.