There is growing consensus that the patients’ voice not only complements clinical and administrative data, but is essential to broad evaluations of health policy, outcomes, and health related quality of life (HRQL). The goal of a national Patient Reported Outcomes (PRO) initiative is to facilitate harmonized and scientifically rigorous use of PROs in Canadian research, clinical practice and population health monitoring.
Need for a national network. A national network is needed to consolidate resources and coordinate ongoing efforts of multiple stakeholders including patients, families, clinicians and scientists with expertise in measurement, research, clinical care, public health, population monitoring, healthcare evaluation, health economics and policy.
Canada PRO Meeting. An initial meeting of representatives from stakeholder groups was held at McGill University in Montreal, Canada on November 4-5, 2013. The goal of the meeting was to identify priority areas for PRO use in clinical practice, research, and population monitoring; review methods, infrastructure, and resources required to develop and sustain a national PRO network; and coordinate efforts with similar international initiatives.