The ISOQOL Board introduced two key themes to focus on over the coming years: Measuring What Matters and Making Measurement Meaningful. An additional topic, Making Sense of Methods, also subsequently emerged. To advance the dialog on Measuring What Matters, ISOQOL held its inaugural Measuring What Matters educational symposium in July 2016. Measuring What Matters is more than just a catchy slogan or catch phrase. It is a strategic imperative and a call for action for researchers to develop patient-reported outcomes (PRO) and other instruments which assess meaningful health outcomes—but for whom and for what purpose? When selecting an instrument, we need to also consider the context in which the measure will be used.

In this special section of the Quality of Life Research journal a series of articles will not only advance the science of patient engagement, but will also encourage others to engage patients as research partners in order to Measure What Matters.


Blum S I, Ahmed S, Flood E, Oort FJ, & Schwartz CE. Introduction to special section: measuring what matters. Qual Life Res (2018): 27:1.